Effective Clinician-Patient Partnering in IPF

Introduction

Every 2 years, the Pulmonary Fibrosis Foundation (PFF) holds a nationwide summit meeting that brings together clinicians, researchers, and people living with fibrotic lung diseases to discuss the latest scientific advances and to share their experiences.

Following the 2017 PFF Summit in Nashville, Tennessee, a panel of invited PFF attendees took part in a roundtable panel discussion that focused on ways to improve communication between people living with idiopathic pulmonary fibrosis (IPF) and their clinicians. The panel was moderated by James E. Loyd, MD, Rudy W. Jacobson Chair in Pulmonary Medicine and Professor of Medicine in the Division of Allergy, Pulmonary, and Critical Care Medicine at Vanderbilt University Medical Center in Nashville. Joining him were Wendi R. Mason, NP, MSN, Assistant in Medicine and a nurse practitioner in the Division of Allergy, Pulmonary, and Critical Care Medicine at Vanderbilt University Medical Center; Tina H. Givens, BS, RRT, a registered respiratory therapist at the University of Alabama Hospital at Birmingham; Fred Haley and Heather Kagel, individuals living with IPF; Barbara Murphy, a lung transplant recipient; and Michele Peters and Lisa Boyd, caregivers who have lost loved ones (husband and father, respectively) to IPF. Mr Haley, Ms Kagel, and Ms Peters are also leaders of support groups.

This report also summarizes key insights from the roundtable conversation on strategies aimed at improving the process of care and access to resources so that patients can maintain the highest quality of life for the longest time possible.

Throughout this activity you’ll be asked a series of questions.
Those marked with an asterisk (*) are required in order to proceed, but your responses are anonymous and will be used to develop future educational activities.

 

Not at all familiarLess familiarSomewhat familiarFamiliarVery familiar
How familiar are you with current data on the pathogenesis of idiopathic pulmonary fibrosis? *